SACRAMENTO – The California State Senate today passed Senate Concurrent Resolution 146, introduced by Senator John Laird, which proclaims May 2026 as Cystic Fibrosis Awareness Month in California.

Cystic fibrosis (CF) is a chronic, progressive genetic disease affecting the lungs and digestive system and remains the most common fatal genetic disease in the U.S. More than 40,000 children and adults nationwide are living with CF, and over 1,000 new cases are diagnosed each year.

“Designating May as Cystic Fibrosis Awareness Month is about recognizing the individuals and families impacted by this disease and reaffirming our commitment to advancing research and improving access to care,” said Laird. “While we’ve made meaningful progress, there is still more work to do to ensure early diagnosis, equitable treatment, and ultimately, a cure.”

Recent medical advancements have significantly improved outcomes. Fifty percent of children diagnosed after 2020 are projected to reach age 65. At the same time, the median age of death for individuals with cystic fibrosis remains under 40, underscoring the continued urgency of research and innovation.

SCR 146 highlights the importance of awareness and early diagnosis. While cystic fibrosis affects people of every race and ethnicity, disparities in screening and access to care mean some individuals, particularly people of color, are more likely to experience delayed diagnosis.

An estimated 10 million Americans are symptomless carriers of the cystic fibrosis gene, often unaware they may pass it on to their children. Early and aggressive treatment, supported by a nationwide network of specialized care centers, can extend both the length and quality of life for those living with CF.

Laird has led this effort in the Legislature over multiple years, introducing resolutions to designate May as Cystic Fibrosis Awareness Month and continuing that work with SCR 146 in 2026. His work has helped elevate awareness of cystic fibrosis, highlight disparities in diagnosis and care, and support continued research into treatments and a cure, in coordination with advocates including the Cystic Fibrosis Research Institute (CFRI).

Since 1975, CFRI has played a leading role in advancing cystic fibrosis research and supporting patients and families. Founded by parents seeking hope for their children, CFRI funds innovative research into gene, mRNA, and drug therapies while providing education, advocacy, and support services.

“Cystic fibrosis remains a deadly and challenging disease. Awareness is key for advancing early diagnosis, appropriate care, and ongoing research to find a cure,” said Siri Vaeth, Executive Director for CFRI. “We are deeply honored by Senator Laird’s support for the cystic fibrosis community in introducing SCR 146 to declare May as Cystic Fibrosis Awareness Month.”

SCR 146 affirms the Legislature’s commitment to raising public awareness, encouraging early diagnosis and access to quality care, supporting individuals and families affected by cystic fibrosis, and advancing research to find a cure.